I had a liver transplant on 12/13/2001 at Jackson Memorial Hospital. I receive my liver from my daughter which is such a blessing to get a second chance in life. My transplant was due to Cryptogenic Liver Cirrhosis. My life changed dramatically but I have no complaints because I am ALIVE. I have been on prograf and steroids since my transplant. I had a rejection in 2004 when my enzymes went up and a liver biopsy was done. Since the rejection I have been taking 2 mg in the am and 1 mg in the pm along with 8 mg medrol twice a week. Since May of this year, my liver enzymes elevated and my doses were increased to 2 mg in A.M and 2 mg in P.M. My Doctors. also increase the medrol to 12 mg per week. Thank God so far my enzymes level went down to normal and I hope they stay normal. I just did my labs on 7/5 hopefully the results are normal. I am hoping my Drs will be decreasing my meds again. SIDE EFFECTS High BP, forgetfulness, anxiety, H/A occasionally but the benefits to me is greater than the risk of side effects. Its been a life changing experience since my transplantation. No complaints at all because I am so very happy to be alive no need to complain but to be content with my situation and live one day at a time. Thank God for my daughter and the medications, and my Doctors too. God bless everyone and thankful to all for the continued prayers. (prayers, prayers, and more prayers) “Pray without ceasing” 1 Thessalonians 5:17)
UPDATE: My ALT had gone up but as of today results are back to normal my meds were not decreased but increased; now I’m on steroids daily. It is well with my soul. To God be the Glory GREAT things He has done. My labs are back to normal. 7/28/11 Thank you Lord!!! I am above ground with my family . Oh how I love my children, they are a Blessing to me. Thank you Jesus.. You are AWESOME! Your name is worthy to be praised….I will continue to do blood test every 2 weeks. Whatever state I am in I learn to be content and be thankful.
UPDATE: AS OF 8/15/11 My labs are normal and have been staying normal since 7/28 My steroids are decreased to 1 (qod) every other day I am still on Prograf 2 mg/2 mg q12h, hopefully I can go back to doing my labs monthly instead of every 2 weeks. Thank you Lord for your blessings on me. God is my strong tower….
As of 9/12/11 my blood test : liver enzymes normal with low platelets and high bilirubin those are usually the norm but I am so, so very happy my enzyme levels are down. No change in my meds but the labs are to be done monthly. Good days and bad days but to God be the glory I am alive!. Thank you Jesus for the gift of a new life, and I learn to be content with whatever state I am in Philippians 4:11) and still learning) because the LORD’S mercies are new every morning.
12/13/2011 It is now 10 years since my Liver transplant Thank God for my children, family friends and all the support system in my life. My daughter who gave me the liver is doing well Thank God for His blessings and for His grace and mercy on us. My meds are the same with monthly Blood test and frequent visits to my Doctors. I owe it all to Jesus. Thank you Lord.,“ Through the Lord’s mercies we are not consumed, Because His compassions fail not. They are new every morning; Great is Your faithfulness.” Lamentations 3:22-23 NKJV)
November 6, 2012 : I visited my transplant Dr. S at the FH Transplant Center. and seen my Nurse Coordinator for the first time. I have been speaking to her every month for almost 10 years. She calls me with my lab results and gives me Drs. Order adjusting my meds. Dr S changed my prograf order and is now decreasing my dosage 2mg in am and 1 mg in Pm. They are from JMH and comes every 3-4 months to see their patients. My next visit with my transplant team will be 1 year. I will still speak to my coordinator every month about my monthly lab results. Thank you Lord for the steady progress. All the praises belongs to You Lord.